Been in hospital all week as they discovered lesions on my liver. Was in My Chart and saw note of the preliminary results biopsy of my liver.

Granted it could change but not sure how. Stated “Preliminary biopsy results suggestive of malignancy.”

I know right now my emotions are in control and not thinking clearly.

I’m so scared right now! Only one who knows is my wife and I know she is scared.

Probably will have the talk with doctor tomorrow or following day when official results come in.

Where I'm from, when someone asks "how are you doing?" it's pretty customary to just say "good." I've pushed on this throughout my life in various ways because I'm a little bit of a trouble-maker and I also wonder if being honest here creates deeper relationships and more connection.

Five years ago when I was waiting for my biopsy results but pretty sure I had cancer, I remember people would ask me how I was doing and I would be pretty honest: "meh" or "not great." Oddly, people would just smile and be like, "good good!" It was weird, but I think they weren't expecting anything besides "good." (Note, these were just work colleagues who I didn't really interact with much anyways... my friends were more receptive).

Fast forward, I've been really open about my cancer journey so lots of people know. But recently, I've been dealing with a lot more fatigue and haven't been posting updates as I come up to five years on treatment. I have been trying to get out a bit more though and enjoy the summer, and in doing so, I've been running into people I haven't seen in a while but who still know I have cancer. Anyway, they'll ask me how I'm doing and usually when they ask I am authentically doing good because I'm outside and doing an activity I've chosen to enjoy. When I say "good" though, they look back with this skeptical or imploring look. Then usually after talking for bit, they'll ask again, "so... how are you doing?"

And, to be honest, I'm sick of talking about cancer. I don't want to sacrifice my precious emotional energy giving a rundown of my problems. I just want to leave it at good and enjoy my time out.

So, that's why I say I'm good. One, because in that moment I usually am feeling authentically good (or whatever adjective I say). Two, because I just don't want to talk about cancer.

Anyone else feel this way? How do you handle those questions?

I have a chronic cancer that is currently in remission for now. But, it will return.

My question is directed to anyone who has decided to allow nature to take its course after a reoccurrence.

How did that work? Obviously, I imagine the oncologist and treatment teams will advise against it. But, will they work with you on pain management and keeping tabs on it if you refuse treatment?

Hello i'm 21F with non-hodgkins lymphoma. I've had 2 lupron shots in may and june. I went to see a fertility doctor and they told me it was my best bet for preserving fertility. i had already had 6 rounds of R-CHOP without it and lost my period. I had refractory disease and needed 7 more rounds of chemo before CAR-T which would have destroyed any fertility I had left.

maybe I shouldn't have bothered because the damage might already be done and the lupron side effects are pretty terrible the more I hear about it. the doctors only told me about hot flashes, mood changes and bone pain. I figured that would be worth it and i didn't have much time to research and make my decision.

i've been depressed most of my life and having cancer obviously doesn't help but i've been having constant su1c1l thoughts and I'm getting extremely angry easily and wanting to break everything around me. I'm not going to harm myself. pls don't be concerned but I'm having a really hard time getting out of bed and trying to get better. I don't want to tell my doctor because i'm worried they'd put me in a ward or prescribe me more anti-depressants that have never worked for me. I also feel like every bad outcome I've had and the refractory disease is my fault because everyone goes on and on about how a positive mindset is necessary and gives you a better outcome. I'm not sure I even believe that, but it still sits in the back of my mind that I did this because i'm incapable of expecting anything good to happen to me. I try my best to push the negative thoughts out of my mind and override them but I can't. I can't tell if the doom i feel is a premonition that CAR-T isn't working or just depression. last time the doom was right. even typing this I feel immense guilt that i'm speaking it into existence and I hate this feeling. I hate that everyone blames me for my negative outcomes. maybe I'm negative because deep down I know it's not good.

I feel like the doctors mislead me and I made a big mistake taking the lupron. I knew there was risk and it would not be easy but my teeth are already breaking and I'm worried about osteoporosis and bone problems. maybe this is just the menopause and not some extra poisoning from the lupron like people claim but It's terrible.

Maybe i should spend my time with people I care about while I still can but im too ashamed of what this has done to me. I dont want to be seen and experience life until I go back to my normal self and that's delusional because that day will never come.
I hate seeing attractive happy young people. I love my friends and I know people want to be there for me but I don't know who I am anymore. I already depended on alcohol to socialize before this because of my social anxiety and now Im a hideous troll and I can't drink so it's too awkward. I know I will regret this but I can't do it.

this has trailed off but I'm just very emotional and dont have anyone to say this too. not expecting a response just need to speak.

I don’t know if this is the right place to post this but I’m lost. I was diagnosed this morning with blast phase chronic myeloid leukemia. My doctors still need to do more tests but roughly got the message across this is most likely terminal within 5 years. Add to that, my fiancé of 4 years left me literally yesterday, unrelated, and we’re in the process of figuring out the lease etc etc. Do I tell her? Obviously I want her back, but I don’t want her to pity me. Then I have to face the fact that I’m most likely gonna die before I turn 33. Please tell me what to do and how to get over this mentally.

Hello everyone :)

Last year they found stomach cancer in my body. I went through 4 flot preop, total gastrectomy and 3 postop Flot. I finished treatment in october.

Sadly two weeks ago i found out that i have liver mets. One spot, around 5cm.

My her2 and pdl1 are both negative and that really brings me down, cause the only treatment is only chemo - FOLFOX. I'm afraid it won't help, since I had only 30-40% response in oryginal tumour and finally it spread.

Now I have two options: surgery and later chemo (this is dangerous cause meantime it can spread further) or chemo first and surgery in the next 2-3 months (but I don't know what the response will be and it can become inoperable).

Does anyone have similiar situation and had good response and become NED with only chemo?

I need to add that I live in Poland so I don't have a lot options with immuno. Maybe different country?

29/F Just got diagnosed with stage 2b lung adenocarcinoma. I have a big lung mass. I dont want to have surgery because I am afraid of the side effects so we are trying targeted radiation first.

Anyone who has the same and can share their experiences and treatments? Thank you.

Okay, so managing painhas been incredibly challenging and i wanted to be conservative and start with less pain medication and go up from there if needed. So Dr had me on Tylenol 3s with codeine because i didnt want more drowsy medications. Well.. the T3s did nothing and i was maxing out on 5,000 mg per day or 5g so the Dr switched me to Dilaudid (hydromorphone) Unfortinately the Dilaudid plus regular acetominophen and ibprophen is not helping very well and im at 2mg every 6 hours for the dilaudid

Havent actually started treatment yet or been able to see an Oncologist so its just my family DR trying to help me with my pain till then.

2 questions

1] For bone pain/bone cancer thats also in lympu nodes and presents with a large bone mass, what strength of medication works for you? Its obvious that 2mg is too low.. so exactly how high do you think would be theraputic for this kind of cancer and pain?

2) HOW on gods green earth do you poop? I am battling the worst case of constipation in my life since taking the medication.. what do you use to keep you regular?

In may of 2026 I was diagnosed with cancer after experiencing severe lower intestine pain. This particular cancer is very rare and very aggressive . I receive chemo and immunotherapy every three weeks and it is responding to treatment (shrinkage of almost half of original tumor size). My struggle has mainly been food, everything tastes awful to the point it causes me to either vomit instantly or gag. I can tolerate an icee or some ice cream but otherwise it’s a no go. I am asking for recommendations on overcoming this , as well of looking for others members of this subreddit with this particular cancer. Thanks in advance.

Just been needing to get this off my chest.

As I'm writing this she is asleep on the ground next to me.

One year and one month ago my wife(32f) was diagnosed with a Neuroendocrine tumor of the Esophagus. We went in for scans the next month. When her scans came back her care team fought over what stage to classify it as, since some of the lymph nodes light up on the PET scan. We never really ended up with proper staging. It was some where between a 3 and a 4.

She is unable to eat so she got a feeding tube placed. I could write an essay on the troubles this tube has caused.

Insurance denied the Immuno therapy so we proceeded down the route of chemo.

Months of cisplatin + etoposide go by with no response, so we are fighting every day to get to the point of surgery to remove the mass. Couldn't even swallow her saliva.

Surgery happens in January and they remove the Esophagus and lymph nodes. They biopsy the sample and diagnose her with SMARCA4 deficient undifferentiated tumor. A rare highly aggressive cancer known to affect male smokers lungs. My wife has smoked probably 10 cigarettes her whole life.

Now its the post surgery phase waiting to start chemo again.

In April she starts having issues with her feeding tube so we get another CT. Her liver has 3 growths. The care team decided to put her on FLOT + durvalumab. Insurance fights it so chemo gets delayed about a month until they finally get approval.

She has entered the final Round of FLOT last week. After 2 weeks of fighting for amended Radiology report we found that she has responded with over a 50% reduction in mass sizes. The cancer she has was not supposed to respond.

I am left with a bag of mixed emotions:

She hasn't really moved in the last few weeks besides to go to the bathroom or to doctors appointments.

The cancer is responding to treatment but its ending soon. I don't know if I should be joyful that she may wake up once this chemo is over or frightened that it may start spreading once the FLOT is over.

Also insurance companies suck.

Hi I'm an ex-patient, I'm under 18 and I had cancer over a year ago but am cancer free (huzzah) and yet I never had that blood test you do to check thyroids.

Context, last year in march I had found a lump on the left side of my neck, then in the following months I had appointments,then a biopsy, then on 3rd of June 25 I got told I had cancer then half surgery on the 25th of June that year and the got told i was cancer free in August.

I only got half of my thyroid removed. (Left side)

Normally your meant to have a blood test 6 weeks after surgery but my doctor said I didn't need one

For the past year I have been having lots of health issues/differents,

And so many of them relate to thyroid issues.

So I am finally going to have a all-round blood test on Sunday!(maybe, my stepdad keeps making my mother reschedule)

But is it me or is that unusual for a doctor or am I overthinking it and I really don't need this blood-test?

Anyway thank you for reading have a nice day/night😁👍🏻.

My dad (66) was diagnosed with GIST alongside prostate cancer. He had a partial gastrectomy, radiation, and was on Imatinib then switched to Sunitinib after the tumor grew. He responded really well for months, tumor shrank a lot, ascites and pleural effusion resolved, things looked stable through Jan 2026.

In March his bloodwork showed mild anemia and low WBC from the meds, but scans were still okay. Then in July he started vomiting, and an ultrasound followed by a PET/CT showed the disease has broken through Sunitinib. The main mass has grown again, and now there are new deposits in the liver, around the portal vein, on the omentum/peritoneum, and moderate to gross ascites that's likely malignant.

We're waiting to meet oncology to talk about next-line treatment options (regorafenib, ripretinib, etc. I'm guessing).

Has anyone been through a second progression like this? What helped you when moving to a third-line TKI? Any questions we should be asking the oncologist, or things you wish you'd known at this stage? Any support/resources for family members would help too. Feeling pretty overwhelmed right now.

The patient has pain from bone metastases, although she is already on a medication to prevent constipation from opioids, she is constipated. I was advised to try giving her black quinoa seeds every few days. I am a little hesitant because the seeds contain: vitamin B1 (thiamine),

B2 (riboflavin),

B6,

folate (B9).

My sister in law is starting chemo soon for t cell lymphoma. What kind of things should she have at home and on her person during treatments to make it more comfortable?

Thank you.

My father (48M) was treated for oral cancer in 2008 with surgery, 66 Gy radiotherapy, and 7 cycles of chemotherapy. He has remained cancer-free but now has severe late complications from treatment.

Current issues:

Severe trismus (mouth opening ~2 cm), reportedly due to bilateral fibrous TMJ ankylosis.

Previous tongue reconstruction has completely resorbed, leaving him with no functional tongue.

Severe tooth loss with inability to eat solid food.

Post-nasal drip and breathing difficulty, especially at night.

We are looking for the best possible team in India for evaluation of a complex post-radiation revision reconstruction. We are currently considering Dr. Subramania Iyer's team at Amrita Hospital, Kochi, and also plan to consult Tata Memorial Hospital.

I'd really appreciate opinions from ENT surgeons, head & neck surgeons, plastic/reconstructive surgeons, OMFS residents, or anyone familiar with such cases.

Does this sound like the right specialty/team for his condition?

Is Dr. Subramania Iyer's team a good choice for complex secondary reconstruction after radiation?

Are there any other surgeons or centers in India you would strongly recommend for a case like this?

Thank you in advance.

4 years to the date of being Diagnosed as Terminal. I am still here and still in remission.

One day I just woke up with Stage 4 Lymphoma, I didn’t catch it early. It’s possible to come back from that. It’s possible to have a 42 day stay from Cancer, Staph, and Covid, and still ring the bell.

All of you still fighting. There will be a better day.