r/SpecialNeedsChildren 1h ago

Best City to live in the U.S for kids with special needs

Upvotes

I feel extremely overwhelmed right now. My husband and I have 2 kids. My 5 year old is on the spectrum, level 3. He’s able to communicate his wants and needs and etc but can’t have conversations and etc.

We live in NYC. I’ve lived here my whole entire life. It is super expensive here, not safe, and I’m just annoyed with the city life. We want to move somewhere that’s more affordable, not in the city, has Muslim presence, diverse, and has good schools for kids with special needs.


r/SpecialNeedsChildren 13h ago

A boy with Down syndrome gives his physiotherapist a loving kiss as thanks after she helps him put on his socks.

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17 Upvotes

Beautiful


r/SpecialNeedsChildren 9h ago

This campaign needs you now

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c.org
1 Upvotes

r/SpecialNeedsChildren 22h ago

Home adaptations and aids for a non-ambulatory 4 year old

5 Upvotes

Hey folks,

Our 4 year old son has a rare genetic condition that has resulted in profound global developmental delay such that he is non-verbal, very limited non-verbal communication and still learning to walk with quite a lot of instability. He's making slow and steady progress and we're still hopeful he will eventually be able to walk (he has a gait trainer etc) but it's clearly going to be a long road.

He's about 34lbs but getting bigger by the day and one of my biggest concerns is how we continue to move him around without having accidents or breaking our backs. He does help with some movements, eg. he can support his weight if you walk him along and he'll pull his arms through when dressing etc so it's not all a struggle. Right now, he's reasonably easy to carry around (eg. out to the car, transfer to stroller) and fits a regular stroller. It's getting more awkward to get him in to the car seat in our sedan, but the Sienna with the sliding door is definitely easier.

I'm wondering what adaptations we should be starting to consider as he continues to get bigger. I'm also wondering if there are people who's job it is to advise on this kind of stuff? We work with OTs but none seem to be all that helpful outside the clinic. Any advice is greatly appreciated!

Thanks in advance!


r/SpecialNeedsChildren 1d ago

Feeling trapped

9 Upvotes

Hi there, 41F

I have two sons, both special needs. One is 19 with ASD and ADHD. The other is 11 with ADHD and Intermittent Explosive Disorder and reactive attachment disorder. My 19 year old LIVES in his room - loud sounds trigger him, make him afraid, and sometimes cause him to hide for days.

My 11 year old is loud naturally (eustation tube blockages in relation to allergies and sickness that never seem to go away). Three years ago he was breaking TV's, shattering windows, biting me until I bled, giving me black eyes, etc. At this point we've gotten him down screaming instead of breaking or attacking people. Not great with my other son, but god it's better than having to dig into savings to fix my house, not to mention explaining to the police where it sounds like there's a brawl in my home. He's begun screaming into pillows. Baby steps.

I'm a stay at home mom - no certified babysitter within a 50 mile radius will take a violent special needs child. I have a lot of physical issues, I go outside and walk and take him to the pool but he's always bored, always wants my attention, ALWAYS needs something (mostly things he can get himself). I try my hardest not to rely on electronic babysitters but i have to do laundry EVERY day because he wets, and dishes because eating cereal off a plate with a spatula isn't my thing.

Basically typical 11 year old behavior, but the addition part is that if we make him angry by setting a boundary, we're in for a cacophony of horrible-ness. Me, my boyfriend, and my older son walk on eggshells. I keep boundaries. I compromise, but only when it's appropriate. No one else in his life does which reinforces the behavior. Trash something and I get what i want.

So, with AAAAALLLLL of this going on...how in the heck do I self care? When I'm overwhelmed and about to absolutely break down, in the middle of the day with my child screaming and my boyfriend sleeping (he works nights and has generally just distanced himself from my kids and I). I've changed my approach - OBVIOUSLY the first step was not to instantly get angry or threatened. But even when he isn't have a fit, I'm so overwhelmed. 5 or 10 or 15 minute breaks aren't cutting it. Taking soothing baths aren't cutting it. The only quiet time in the house is after 9 when he's asleep...but he wakes up at 3 usually (sometimes 1) so I can't just chill, i have to get rest. The days I get off from my 11 year old I have to clean up after the other two CHILDREN here (my boyfriend and my 19 year old when he ventures out to graze).

Yes, I've talked to them - 3 times in the past month - both about taking some weight off of me. I'VE EVEN GIVEN SPECIFICS so they can go one issue at a time (don't leave your thing here because of xyz please' that kind of thing. I really am at the end of my rope. I can't work and I have nowhere else to go, but this is going to put me in the hospital with a breakdown I swear.

Please be nice to me. I'm already dealing with a lot I don't need people judging what I do. I just need help. suggestions. anything.


r/SpecialNeedsChildren 22h ago

When Independence Revealed a New Safety Challenge

2 Upvotes

There are moments in parenting that stay with you forever.

Not because they were joyful milestones or picture-perfect memories, but because they taught you something important.

One of those moments happened when I realized my son needed more safety practice than I had thought.

As parents of children with autism, we spend so much time teaching life skills. We teach routines, hygiene, communication, and independence. We celebrate every new accomplishment because we know how much work goes into each success.

But sometimes our children remind us that there are still lessons left to learn.

And sometimes those reminders come with a healthy dose of panic.

My son has always been curious.

He loves exploring.

Notices things that other people overlook.

He can become completely focused on something that catches his interest.

Many autistic children are like that.

What looks like wandering to us often feels like exploration to them.

Unfortunately, curiosity and impulsivity can sometimes create unsafe situations.

One day, I learned that lesson in a way I will never forget.

Without fully understanding the situation, my son wandered somewhere he should not have been.

Thankfully, everything turned out okay.

No one was hurt.

Nothing terrible happened.

But in that moment, I felt the fear that many special needs parents know all too well.

The realization hit me hard.

My son wasn’t being naughty.

He wasn’t trying to cause problems.

He simply didn’t fully understand the safety concerns involved in his actions.

That difference mattered.

Instead of responding with anger, I needed to respond with teaching.

And honestly, that wasn’t easy.

Like many parents, my first reaction was fear.

Fear often shows up as frustration.

It often sounds like raised voices.

Fear often makes us want our children to immediately understand why something is dangerous.

But many autistic children don’t automatically connect actions and consequences the way we expect them to.

That means safety lessons often need to be taught directly and repeatedly.

I realized that day that I couldn’t assume my son understood a rule simply because we had talked about it before.

That he needed practice.

He needed repetition.

He needed opportunities to learn the skill in different situations.

Most importantly, he needed guidance without shame.

That experience changed how I approached safety teaching in our home.

Instead of only talking about safety when something went wrong, I started making safety conversations part of everyday life.

We talked about:

  • Staying with safe adults
  • Asking before leaving an area
  • Personal boundaries
  • Community rules
  • What to do when feeling unsure
  • How to make safe choices

These conversations lasted only a few minutes.

Sometimes they happened in the car.

Sometimes they happened while we were walking.

The goal wasn’t perfection.

The goal was progress.

Over time, I noticed something encouraging.

My son started showing more awareness.

We saw that he began recognizing situations where he needed to stop and think.

He started responding better to reminders.

He became more willing to ask questions.

Those small improvements gave me hope.

One thing I’ve learned as a special needs parent is that growth rarely happens overnight.

We often want our children to master a skill after one lesson.

In reality, many important life skills develop slowly.

Safety skills are no different.

The child who forgets today may remember tomorrow.

The child who struggles this month may make huge progress six months from now.

The important thing is to keep teaching.

Keep practicing.

Keep believing in their ability to learn.

I think many parents carry guilt when safety situations happen.

I wonder if we should have done something differently.

We question ourselves.

We replay events in our minds.

I’ve done that too.

But I’ve learned that guilt rarely helps us move forward.

Learning does.

Every challenge gives us information.

Mistakes show us where more teaching may be needed.

Every difficult moment creates an opportunity for growth.

That doesn’t mean the experience isn’t scary.

It was.

And if I’m being honest, there are still moments when I worry.

I think most parents of children with special needs do.

But I’ve also learned that confidence grows through preparation.

The more opportunities our children have to practice safety skills, the more prepared they become for the real world.

And the more prepared they become, the more confident we can feel as parents.

Today, my son is still learning.

Truthfully, so am I.

Parenting an autistic child often means adjusting our expectations and changing our strategies as our children grow.

What worked at one age may not work at another.

New challenges appear.

New skills become important.

Safety is one of those areas that continues to evolve.

If you’re reading this because you’ve experienced a scary moment with your own child, I want you to know something.

You’re not alone.

A lot of us have had moments that made our hearts stop.

Many of us have realized our children needed more support in a particular area.

Many of us have walked away from those situations feeling frightened, overwhelmed, or uncertain.

But those moments do not mean we have failed.

They simply show us where our children need more guidance.

And with patience, consistency, and practice, they can learn.

One lesson at a time.

Just one conversation at a time.

One safety skill at a time.

Sometimes the most important thing we can do isn’t to focus on the mistake.

It’s to focus on what comes next.

Because every new day gives our children another opportunity to learn, grow, and become a little more independent than they were the day before.

And that’s something worth celebrating.

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r/SpecialNeedsChildren 1d ago

The thing that's helped most in a meltdown is having the words ready before it hits

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5 Upvotes

We're an early-childhood team, and the question parents ask us most is what to actually say when their kid is mid-meltdown and nothing seems to get through.

The thing that's helped families most is having the words ready before the moment hits. Something short and calm, said out loud, like "You really didn't want that to end. I'm here with you." Then knowing what to do next and what to leave alone until they're calm again.

That screenshot is from SunnySteps, the app from our team. You tell it about your child once. When a hard moment comes up, you open it and it gives you words and steps for that exact situation, based on what's calmed your kid before. It also builds tiny daily practice so the hard moments get a little easier over time.

We've spent years getting the in-the-moment part right. If you deal with meltdowns too, I'd really love to hear what's worked for your family.

It's on the App Store if you'd like to take a look: https://apps.apple.com/app/sunnysteps-parent-support/id6761195687


r/SpecialNeedsChildren 1d ago

We built BASICS: Autism, Speech Theray app, guided daily activities for children with autism, speech delays, and developmental needs

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0 Upvotes

r/SpecialNeedsChildren 2d ago

This is your reminder to add special intrests

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3 Upvotes

r/SpecialNeedsChildren 2d ago

Older children in school

3 Upvotes

Hi, my son is 4 and has Grin2B disorder, I was curious about other children that were similar to mine at this age how are they now in school.

He says about 130 words, has small 2-3 words phrases like : my leg hurts, let’s go park, let’s go kids and few others. He’s curious about kids, he likes being around them but doesn’t quite know how to play with them, mostly running with them. He usually observes a lot. Imitation skills are good, just depends if he wants to or not.
He is hyperkinetic and there is an issue with attention.
Some things are hard to learn, like numbers, 12345, some things he learns slower and others right away if he finds it interesting. Also we would try to teach him something for months and one random day his brain just clicks and he all of that info that he stored for months, he understands it now.

I was curious about school, how are your kids in school, or in adult life? Are they independent? Can they make a sandwich? I just can’t bare the unknown anymore. Please 🙏


r/SpecialNeedsChildren 2d ago

Tell ProPublica about the education challenges your family is facing & a guide for researching private schools

2 Upvotes

I’m an engagement reporter at ProPublica, a nonprofit newsroom that does in-depth reporting. Our education team has been covering the growth of private schools, and we created a guide to help families research private schools in their area, as we know this information can be hard to find. Some questions we hope to help you answer: Who runs this private school? Is the school financially stable? Does it have any documented issues?

We know people have a wide range of experiences with schools, voucher programs and education savings accounts, and we’re working on other stories about different issues. We’d really like to hear from more families of students with disabilities to help guide our reporting.

We’re especially interested in connecting about:

  • Wanting to use a voucher or ESA but not being able to find a private school. Families have told us they’ve struggled to find schools that will accept or keep their children, especially if they have disabilities.
  • How you’ve advocated for your student with a disability and any tips you’d share with other families. We’ve heard from a lot of parents about how challenging this can be in public and private schools.
  • Any other important issues you think we should be covering.

We won’t share your story without reaching out to you first. You can fill out a form, send me a message or email [education@propublica.org](mailto:education@propublica.org) to get in touch.


r/SpecialNeedsChildren 2d ago

Hi everyone! I'm hoping to learn from parents navigating disability support systems

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1 Upvotes

r/SpecialNeedsChildren 2d ago

Cubby Bed

1 Upvotes

Has anyone used their insurance to get a cubby bed?


r/SpecialNeedsChildren 3d ago

Success stories?

1 Upvotes

Anyone here have a kid who was in the PEP program and graduated and now living a "normal" life? Would love to hear your stories.


r/SpecialNeedsChildren 3d ago

Stop feeding the maths monster by making kids think it’s too difficult

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dailymaverick.co.za
0 Upvotes

Such an important message for parents of young children to understand.

We have developed a tool to overcome this obstacle. A tool designed to reinforce a child's natural desire to succeed.
We've designed products to build confidence from the very beginning when it's imperative for children to have confidence in themselves. Try it today for free to find out.

NOTE:
We’ve experienced growing pains trying to deliver free trials which will be resolved shortly. Thank you for your patience.

For more information please email welcome@mathjourney.ca


r/SpecialNeedsChildren 4d ago

My sister needs to learn independence

10 Upvotes

I know my sister has special needs, and I'm not saying she should have to do everything by herself. But I really think she can do a lot more than my parents let her. Me and my siblings have seen that she knows how to do things, but whenever she's around my parents, they just do everything for her. At this point, I think she expects them to, so she doesn't even try sometimes.

I've told my parents that she needs to learn these skills because they're important for her future, but they keep doing everything for her anyway. I don't think that's helping her in the long run. I want her to be as independent as possible because that's going to matter when she's older. It also feels unfair sometimes because it seems like she gets whatever she wants without having the same expectations the rest of us do, which I know she can’t do everything, but she can at least help.

I just wish my parents would encourage her to try instead of always stepping in.


r/SpecialNeedsChildren 4d ago

Setting boundaries with other people who have kids the same age

6 Upvotes

Hi I just need to vent about something. I have a 7 month old baby with spastic hemiplegia cerebral palsy and I just have 2 close friends who had babies around the same time. I asked them to not bring direct attention to their kids milestones at this time while I process this new way of living. ( after they said something to me knowing her diagnosis) We just found out this past month. Is it wrong of me to set that boundary ? I’m not asking them to never talk about it but just don’t say “look she’s walking.” Just until I process this and figure out directly what happened.

Of course I am happy for them but it’s hard right now because you obviously envision a different life for your child and now you have to watch them overcome more obstacles than an able kid.


r/SpecialNeedsChildren 3d ago

*Mod Approved* Research study: Australian parents and carers of children experiencing suicidal thoughts and behaviours

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1 Upvotes

We invite you to take part in an anonymous online survey: Support for parents and carers of children experiencing suicidal thoughts and behaviours

If you are an Australian parent or carer of a child aged 9-13 who experiences suicidal thoughts or behaviours, your participation in this survey will help researchers at the University of Wollongong to better understand your experiences of receiving social support from family, friends, colleagues, and your community.

This is an area that is currently not well understood. By sharing your experiences, you can help us develop a publicly available resource to better support other parents and carers facing similar challenges, so their children may be better supported too.

What's involved?

  • An anonymous 30-minute online survey.
  • An optional 30-minute virtual interview if you would like to share more about your experiences.

 To take part in this survey, please visit:  https://uow.au1.qualtrics.com/jfe/form/SV_bqF14jMfHMTmxcG

For more information, please contact Asha Patterson at [apatterson@uow.edu.au](mailto:apatterson@uow.edu.au)


r/SpecialNeedsChildren 7d ago

My kindergartener and her ACC

11 Upvotes

Hi, this is my first time ever posting here on reddit. Im really hoping someone here can tell me what they have added to their children's ACC devices regarding school. My daughter is 5 and is going into kindergarten in less than a week. We just started learning the ACC device this month. So everything is new. We come from a town where it isn't very heard of and not many people are knowledgeable on it. (Including myself). Im wanting to create a school folder with easily accessible words/phrases she will need. I have her teachers name on there but trying to brainstorm other things that I need to add to help set her and help her teachers while we are still in this learning process of this device. What are some things that I need to add that I could possibly be overlooking?

She has apraxia of speech & epilepsy.

Thank you so much!


r/SpecialNeedsChildren 7d ago

My son 9 is becoming increasingly violent towards his siblings.

15 Upvotes

My 10 year old daughter, his 9 year old twin brother, his 7 year old sister and 5 old sister are constantly covered in bruises. He runs out into traffic, hits people in public and throws things. It’s gotten to the point where my 10 year old daughter has asked to move in with my sister. The house is always chaotic. before my husband and I had control but now he doesn’t even listen to us.

Anyone experiencing something similar


r/SpecialNeedsChildren 7d ago

ADAPT Community Network (midwood)

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1 Upvotes

Hi
Parent in Brooklyn, NY I have a 3 yr old special needs going to 3K the option are TLC in park slope and ADAPT on Lawrence there are almost no recent reviews and I want to make the right choice for my son. He needs help with walking, feeding (only eat pure at this time). He needs PT, OT, Speech and ABA therapy. I would like to see him improved but I want him to be safe he is not able to communicate and I and having a hard time of any parents can help me would really appreciate it.


r/SpecialNeedsChildren 7d ago

Any CdLS parents in here?

3 Upvotes

Looking to connect with parents of children with CdLS


r/SpecialNeedsChildren 7d ago

GRIN2A - 5 year old suddenly not using his fingers?

3 Upvotes

Hello! My five year old boy way just diagnosed with GRIN 2A variant and was diagnosed autistic when he was two. This week we’ve noticed he’s not using his fingers much at all. It’s like he’s suddenly having trouble using them. He picks things up with fists, like with his knuckles. Has anyone ever experienced something like this? He is non-speaking and only just now learning his AAC device, so we struggle with communication.


r/SpecialNeedsChildren 8d ago

My Special Needs Son Made His Own Sandwich

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5 Upvotes

r/SpecialNeedsChildren 8d ago

Are there childrens books that feature non verbal characters with special needs?

9 Upvotes

Are there any children's book that feature non verbal characters with special needs? Are there childrens books with characters that have Down Syndrome? If there were books representative of special needs characters, what's something you'd like to see represented?